Where to get Addison's disease help
Addison's disease help usually starts with your endocrine team, the NHS steroid emergency card, and trusted patient groups — then daily tools that keep medication, symptoms, and emergency steps in one calm place.
- Register with a specialist endocrine team and know who to call for sick-day advice.
- Carry your NHS steroid emergency card and any prescribed injection kit.
- Use patient groups such as the Addison's Disease Self-Help Group for peer support.
- Build simple daily routines: dose anchors, symptom notes, and rest when unwell.
- Keep emergency instructions where carers can find them quickly.
Clinical Addison's disease help comes first
Addison's disease (primary adrenal insufficiency) is managed with hormone replacement and a personalised sick-day plan. Your GP and endocrine team remain the source of truth for dosing, tests, and when to seek urgent care.
If you are newly diagnosed, ask for written sick-day rules, injection training if applicable, and how to reach the team out of hours. Good Addison's disease help is specific to you — not generic internet advice.
Daily support that reduces stress
Between appointments, many people use medication reminders, short symptom check-ins, and a single place for emergency information. The goal is not perfection — it is having enough structure that a bad day does not become a crisis of forgotten doses or missing information.
Apps like MyAddi are designed to sit alongside clinical care: reminders, mood and energy notes, care-circle updates, and step-by-step SML emergency guidance for adrenal insufficiency.
When to seek emergency help
Severe weakness, vomiting, confusion, or collapse can signal adrenal crisis — a medical emergency. UK guidance is to call 999. Addison's disease help in an emergency means clear written steps for you and anyone nearby, not searching multiple apps under stress.
How MyAddi helps
MyAddi brings Addison's-focused daily tracking, medication reminders, and SML emergency help into one app — free during the closed beta.
Frequently asked questions
- Is MyAddi a replacement for my endocrine team?
- No. MyAddi supports daily routines and emergency guidance; all medical decisions stay with your clinical team.
- What free resources exist for Addison's disease in the UK?
- NHS condition pages, the ADSHG, and your hospital endocrine service are the core resources. MyAddi adds a practical daily app during its free beta.
- Can family members get Addison's disease help through the app?
- Yes — care-circle features let patients choose what carers and parents can see, including emergency-related updates when configured.
Sources
This guide is for general information only. It does not replace advice from your GP, endocrine team, or emergency services. If you think you are having an adrenal crisis, call 999.